Who decides if your child lives?

Imagine you’re a parent of a sick little girl. Her kidneys are failing her and you’re told that she’ll live for 6 months to a year without a transplant. But that’s what you’re here for, that’s why you’re at the hospital. You’re here to talk about your daughter’s transplant. You and your spouse intend to donate, if eligible. If not, you have an extensive family that wants to help out. You’ve researched and planned and you’re ready to move forward.

Until the doctor tells you that your daughter is not eligible for a transplant, solely because she is mentally retarded.

Disgusting, right? Unbelievable? That’s what I thought when my cousin sent me a link to this story last night. And it happened in my hometown . . . at a hospital I’ve been singing the praises of for years.

On January 10th, just one week ago, Chrissy Rivera, Amelia’s mother, was told that her daughter would not be able to get a kidney transplant at Children’s Hospital of Philadelphia (CHOP) because she has brain damage and is cognitively impaired.

I take the most issue with Amelia’s doctor . . . someone whose duty it is to advocate for her best interests. Read her story, complete with his callous responses. He signed a death sentence for Amelia and sees nothing wrong with it. He disgusts me.

I also take issue with the medical profession in general. The fact that this is allowed . . . in 2012 . . . is absolutely fucking ridiculous! According to Ms. Rivera, this is not an isolated incident and it happens “across the map”.

If you want to help, please sign the petition at Change.org urging CHOP to allow Amelia’s transplant surgery. Share Amelia’s story . . . on Facebook, Twitter, your own blog, wherever! Share the petition. Help make a difference!

Cognitive functioning should *not* be a criteria for the right to live!

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16 responses to this post.

  1. I signed the petition. I’m like you, I can’t believe that this is going on in 2012! And in America! How can anyone decide that another person, especially a child, doesn’t deserve the right to live? Because that is what this doctor has done! It’s despicable!

    Reply

  2. Posted by Karen Garnica on January 17, 2012 at 6:29 pm

    signed and shared the petition, this is so disgusting, physicians in this country deciding who gets a chance to live and who doesn’t is deplorable, unfortunately, this type of thing happens alot, especially to disabled and those without insurance

    Reply

  3. OMG! 😦 How horrible! I am definitely signing AND sharing!

    Reply

  4. Definitely signed it! I couldn’t believe this story either! It just goes to show how much discrimination still exists and how we need to keep publicizing stories like this to raise awareness! Thanks for sharing about this, Dayle!

    Reply

  5. Signed it. Thank you, Dayle!

    Reply

  6. Signed! Thank you for bringing this horrible news to our attention. I work in the medical field and there is constantly something coming along that absolutely disgusts me, and this is one of the worst I’ve seen. Don’t these doctors have to take a vow?!?! How conveniently they forget! Thank you again, Dayle, for posting about this!

    Reply

    • Thank you, Jen!

      I thought the same thing about doctors having to take a vow. I know they’re not all like this, but the fact that those who are, are able to get away with it just makes me even more disgusted with our healthcare system!

      Reply

  7. […] post is a strong urge to go read my friend Dayle’s post about a little girl being denied her rights to a transplant due to being mentally handicapped. The […]

    Reply

  8. This actually goes on in the world in 2012??? Shocking and heart wrenching. Not sure it will count as I don’t live in the U.S. but signing now.

    Reply

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